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捐助人关于捐助“不治之症”的思考,和对隔壁美眉质疑的几个问题的正面

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15-12-14 11:25操作
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我基本同意gilda 的几点, 但是也有一些不同的看发。 HIPEC is not a standard of care in US for a lot of disease. But insurance still covers in most cases. However, there is no evidence that HIPEC works in her disease. I can not believe that she is going to Cancer Treatment Center of America and will donate all the rest of money to them. It is a franchised private group practice (in her home page). I think this is a situation that many academic centers denied her case because of lacking of evidence and risk is greater that benefit. We are all saddened by her dying young. But at certain point, you have to say to yourself, enough is enough, which is a relieve for herself and her poor husband. Again, my opinion may not be relevant to the donation.
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15-12-14 11:47操作
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只是决得到了现在, 安安应该对他丈夫说,停止治料,回家安静地过完剩余的时间。Otherwise, if she cannot have HIPEC, her husband will feel guilty for the rest of his life. Her husband has already overworked physically and emotionally. I will not do that to my spouse if I love him.
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15-12-14 12:30操作
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是啊!说什么到了这个时候你应该放弃治疗,或者换做是我我就放弃治疗了。妈个鸡真是站着说话不腰疼,等真的轮到你了你再放弃治疗也不迟


lk1223 发表于 12/14/2015 12:16:06 PM [url=http://forums.huaren.us/showtopic.aspx?topicid=1940040&postid=70059088#70059088][/url]
请注意你的language! 这不是站着说话不腰疼,前面说安安的丈夫差点出车祸 因为劳累,试想一下,如果他真出了车祸,安安会怎么样?她会很guilty 地离开这个世界。我并非让她一开始就放弃,只是到了没有好的治疗方法时,应该考虑,减少对家人的负担。
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15-12-14 12:55操作
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我倒没读过文献,不过逻辑上来讲,“目前没有证据显示HIPEC对她的病情有帮助” 并不等价于 “目前有证据显示HIPEC对她的病情没帮助”。

科研就是这样的,证据的积累需要时间和足够多的cases,个别case serie和anecdotal stories并不构成足够强力的证据链去证明什么。在充分证据出现之前,多尝试,多积累证据,并不能完全归类为是傻人走投无路病急乱投医的做法。


Sweet.Jane 发表于 12/14/2015 12:29:02 PM [url=http://forums.huaren.us/showtopic.aspx?topicid=1940040&postid=70059254#70059254][/url]
谢谢指出typo。你的argument有一定的point.但西医讲的是evidence based medicine,中医比较注重个人经验。我觉得evidence based medicine 还是有道理的。同意多尝试多创新,这要在严格的regulated research setting,而不是让病人来负担费用。至于捐给cancer treatment of america,也是可以的,只是这是donation 来的,有人可能不愿意,比如我。
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